Part 2
I wish I could go back to May 2019 and Laugh and say what a silly girl. Honestly that is how I have always looked at things. I assume everything is a mistake until the words are vocalized and even than I will ignore it and pretend it doesn't exist until it effects me.
The Rheumpotolgist was very kind. He said "This is what I do and I love it. From a distance we can see something is in the shape of a horse now we just need to get closer by ruling out what it is not. Is it a donkey, a horse, zebra, Mule as Jack ASs." FYI at that point ADHD took over and my mind went into is't a donkey and a Jackass the same thing? I forgot that zebra is in the horse family.
When I said "So we are ruling out MCDT?" The doctor gave me a funny look. "You have MCTD. Now it is finding part of the mixes you have." He seemed confused and left the room.
He might have been confused because I kept saying so nothing is wrong with me? It hit me and I looked him straight in the eye. "Its not all in my head than?"
"No. see you in 6 weeks here are you labs and prescriptions lets see if the prednisone will work."
Leaving the office with labs, a box for labs and prescriptions. My husband and I were shell shocked. I decided i still didn't have mixed connective tissue disease I hurt from old person arthritis.
6 weeks later I found the pain was less but I still struggled and took lots of Advil. We had a family vacation that was fun but had been laying in bath tubs crying wishing for strength to be able to keep up with my family. In the end I found myself the last day at the beach sleeping until we packed to go home. Than slept almost the whole way home my body couldn't move if it wanted to. Eating took to much energy.
Seeing the Dr with my husband again and the Dr said your labs came back and only one was abnormally low so I am thinking Mild Lupus which means no organ involvement. Would you like to start Methotrexate or stay on the steroid.
I am good with the steroid. Honesty I wasn't ready to see myself as sick with Autoimmune disease.
More labs and 6 week visit again. I was tried and my body hurt. I had lost over 10lbs from listening to everyone around me and cutting out every food and drink that could possible cause me issues. I still hurt.
I was so bad a friend said "If it was your child would you allow them to be in this much pain our would you get them to the Doctors?"
I found myself in the doctors office meeting the other Rheumatologist . We went over the same information and she gave me a pill for of Methotrexate with Folic Acid. Heading home all I could think was my life as I knew it was over and everything no matter how hard I tried or what I had worked for was over. Everything had changed and I was scared and praying for peace.
FYI the pill Methotrexate makes me really sick!! Dry heaving and felling like I am pregnant all over again for almost 2 solid days. That was with all the advice I was given on how to control the side effects.
Fast forward My Dr put me on injections and months later after fighting with insurance I was on the awesome Auto injection. Starting the new year I thought this is going to kick the Diease right out of my body.
My birthday came and went and I was hurting, Valentines came and went I was still hurting. Seeing the Dr I asked can we kick this in the butt please. Started 15mg injection. I spent a week sicker than when I was pregnant from one injection. I took anti nausea medication that took constipation to the next level. I thought I had died and gone to hell.
I cried knowing that I wasn't going to be able to take thi injection that had been helping because my body couldn't tolerate. March comes and the Dr tells me they will figure something out.
April The Virus that shall not be named lets face it turned me into a crazy, mom of 4 trying to teach school, help 4 kids feel successfully and dealing with next level pain.
The Dr said let start you on Xeljanz. So many has gone on and honestly I am tried of writing about it.
In two weeks I will see my Dr again to go over the latest blood work that will look like all the others PERFECT!! To figure out if the medication is working or not.
I promise to fill you in on my crazy jounary into the work of MCTD
FYI the pill Methotrexate makes me really sick!! Dry heaving and felling like I am pregnant all over again for almost 2 solid days. That was with all the advice I was given on how to control the side effects.
Fast forward My Dr put me on injections and months later after fighting with insurance I was on the awesome Auto injection. Starting the new year I thought this is going to kick the Diease right out of my body.
My birthday came and went and I was hurting, Valentines came and went I was still hurting. Seeing the Dr I asked can we kick this in the butt please. Started 15mg injection. I spent a week sicker than when I was pregnant from one injection. I took anti nausea medication that took constipation to the next level. I thought I had died and gone to hell.
I cried knowing that I wasn't going to be able to take thi injection that had been helping because my body couldn't tolerate. March comes and the Dr tells me they will figure something out.
April The Virus that shall not be named lets face it turned me into a crazy, mom of 4 trying to teach school, help 4 kids feel successfully and dealing with next level pain.
The Dr said let start you on Xeljanz. So many has gone on and honestly I am tried of writing about it.
In two weeks I will see my Dr again to go over the latest blood work that will look like all the others PERFECT!! To figure out if the medication is working or not.
I promise to fill you in on my crazy jounary into the work of MCTD
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